Thanks for all the kind thoughts, prayers, visits, gifts, and encouragement these past 2 weeks! It wasn't the best 2 weeks of our lives, but I'm feeling good about everything that came of it - and about being home in "new house!"
Sunday, July 11, 2010
We got home yesterday around 3 and had a good night last night - no problems with the pump, tube, or anything! The doctors still don't have a great explanation for the low blood sugar, but they sent us home with a glucose meter so that we can check her levels 3-4 times a day. Lots of needle pokes, but she's a tough kid, I guess. We go back to endocrine on the 20th, so they will evaluate the log of her sugars and see what we need to do. Chances are, it was just that she had so little reserves that after going 2 days without any food, her body just wasn't getting what it needed from the IV fluids. Hopefully next time we have to go that long, the doctors will be willing to give her TPN (total parenteral nutrition, which goes through an IV, like what she had in the NICU when she wasn't on full feeds) so that she'll be able to regulate things better.