So far today, we've had projectile vomiting, a new n-g tube placed, an x-ray, an echocardiogram, a session with physical therapy, a session with occupational therapy, exams by an intern and a fellow, interesting rounds with the attending, a mini exam by an endocrinology resident, a round of phone tag with the case manager, a conversation with the home health agency, and three groups of visitors (2 of whom brought food, all of whom were/are wonderful). And it's 1:00. My, there's a difference between July 5th and July 6th! Still to come are a visit from the G-tube nurse (to give John and me some training), the gastric-emptying test (now scheduled for 3:00), and a visit from the home health folks (to deliver supplies, even though we don't know which formula we are going home on).
After that, we're just waiting for the surgeons to come get us at any point - middle of the night, tomorrow, (Lord help us!) the next day, etc.
Yes, we've decided to get the g-tube. I'm going to spare you the gory details of the decision-making process because I really, really want to eat the food brought by
one of my future sons-in-law, but we have decided to go ahead with the surgery and to do it inpatient while we are here. I'm thrilled to have made a decision, and I'm hoping and praying that it's the right one. Well, maybe there wasn't a "right" and a "wrong" here, but I hope it turns out to be a good one. Time will tell, I guess.
For now, it's time for mama to FEAST!
I know it was a hard decision, but having been there and done it, we often felt it was the best thing we did. The stress and anxiety over weight gain immmediately started decreasing. I pray it goes the same for you!
ReplyDeleteGod bless! Stacy
I'm glad you all have been able to reach a decision. I know you have her best interest at heart and God will provide for this sweet girl. You guys are great parents and Becca is so lucky to have you!
ReplyDeleteYou have made the right decision. The extra nutrition has made a huge difference for us and makes it easy to get in the formula when she refuses (regularly) You will be a pro in no time and it is so nice to see that pretty little face without all the tape. Be sure and invest in lots of onesies to keep the little hands off and old navy makes some button down suits that are awesome for jammies. You dont even have to wake them up to sneak in a tube feed~
ReplyDeleteI'm so happy for you guys that you made a decision. I'll be praying for the surgery.
ReplyDeleteI'd like to make dinner to bring you guys when you come home, if that's okay. Actually, it doesn't matter if it is or not, because I'll just let myself in and put it in the fridge... Mwahahaha...
;)